“A change in perception creates a change in personal reality.”  - Kurek Ashley

Today its Thursday 30th june and taken me a couple of days to get some clarity with our little Angels results after her visit to the Goldcoast to see Dr Pete Smith our Allergist.

As we walked into his office and waited to be called in by him , my nerves built up not fully aware if we were going to be walking out with yet another Epipen for our family which already has Two.  This quote ‎“A change in perception creates a change in personal reality.”  - Kurek Ashley  is what has been keeping me positive , after we found out that our little Angel has condition called FPIE – Food Protein induced Enteropathy which is a less severe condition then FPIES and yet still treatment is still the same.

I’ll be honest for a time after we were told officially By Dr Pete Smith that she has this condition , and yet had skin test which came back great compared to her brothers meaning no Epipen is needed , we couldn’t help but Celebrate the no Epipen. Then came the travel home and the time to think and think about what this meant to us and to our little one.Well first of all on the way home we stopped off for lunch , not a normal lunch in which everyone would stop and have and get out of their car and order and possibly sit and eat.Yet we stopped and ordered and had to sit in the car with one of us keeping our little Angel busy and distracted then swapping over all to make sure our little one didn’t see us eat as we can’t feed her anything ( mind you she was given her prescription formula and also some pear , which she is allowed).

I suppose even after lunch and the travel home it wasnt until later that night I sat and thought of what else this will change over the next few years.We already couldnt celebrate her 1st birthday with a birthday cake. I sat and started to think how if she was just needing an Epipen how I already know what to do and how to avoid things to keep them safe , I suppose the unknown journey ahead was what I feared just when you think you have things sussed , life then shows you that you really don’t. Around every corner is a new lesson and a new journey.

So back to Perception , when I was sitting Tuesday night after we got back home , I had moment where tears just flowed , with all sorts of feelings yet again the same as when we first had one of our little ones diagnosed with Food Allergy and given an Epipen….. Questions of why our children? , why us? , what have I done wrong ? etc when I was stopped by my husband as he saw me upset and had run me a bath and said to go relax ( yes my bucket was empty as written in one my previous blog that sometimes we need time out for ourselves , and sometimes someone close to us needs to remind us of this).

As I layed and relaxed in the bath I still had out of control thoughts going through my head wondering the where from here etc?? then I started to change my perception , started to change the questions that I was asking myself, Some these questions were What am I grateful for? What is great about today? …… as soon as we ask ourselves right questions we soon get the positive up lifting answers we need.

So hence why my Title of this blog ,  that on any journey in life have it be Food Allergy related or not if we change our perception and way of thinking it is amazing where our mind goes and from there the more



empowered we can feel to take on our days and the next challenges we have in front of us , as i so know this isn’t the first and sure isn’t going to be the last.

So let me leave you with this other quote

“Weather you Think you can , or can’t You’re right” – Henry Ford

Thank you for reading look forward to any comments or Questions

heidi 

****An enteropathy identifies a disease of the intestine. A protein induced enteropathy is a condition in which there is a loss of protein from the intestine, resulting in the inability for the organism to absorb proteins.
An enterocolitis also called coloenteritis, is the combined inflammation of the small intestine, the bowel, an enteritis, the large intestine and the colon.

The symptoms seen in infants with dietary protein enterocolitis are very similar but more severe than those observed in protein enteropathy.

Just a quick update on my little princess Atopy Patch testing. After the results of the Wheat and Corn we decided to leave few days between as it seems where the patches were have completely disappeared as expected , although she has seemed to have sore ears , don't directly know this time round if it has a connection with her active immune system after the tests , but taking the time to wait till seems better for her. When she has had foods via mouth she has ended up with sore ears as one of the results.
Brings me to let you know that our youngest son had constant ear infections pretty much from birth till 12 mth's old , and each time it was diagnosed severe to end up having Antibiotics nearly every time , not only did he have ear infection and then got given Antibiotics he then went on to react to the ingredients in the antibiotics which in turn caused the opposite ear to flare up. Wasn't until we came across our awesome doctor that we have now that she said oh my goodness we need to write you a urgent referral to a Pead Allergist being at the time was then the first time we met Dr Pete Smith. Who in their right mind let alone all the previous times given antibiotics by doctors would you pick up it was related to food allergy as well as Tonsilitis ( oh and also told overtime that we were going to have to book him in to get grommets and have anoids etc done as well )
We got a rushed in urgent appointment with Dr Pete Smith ( keep in mind he had a 18 month to 2 year waiting list ) to walk away the day after his first birthday with a Epipen and told to avoid Dairy , Egg , Nut , Soy , Wheat wow what a huge life changing experience and journey ahead that was about to begin from that moment , and guess what no more ear infections.
So i suppose the moral of this blog was most doctors treat what is in front of them and don't look for the cause , as a mum or parent we need to be so switched on and aware as no one knows our children as well as we do ( each doctors visits i would say no we aren't getting grommets as there is a reason for this to be so often , also knowing that some children have a lot of scar tissue from having grommets and some fall out and need them done more then once). Learn to be confident in you intuition with what is happening with your children , as 99% of the time you will be correct , each time you find out you are right you will gain confidence in your internal guidance that you have.

Wishing you all a most wonderful week ahead and practice being in tune with your own intuition , you may surprise yourself , speak up to your doctors and don't always trust what they have to say ( as i have found and was told by another doctor "that they learn the theory but we are the ones living this everyday" and will share that exact moment that was said to me in another blog you will be surprised ).

Heidi :)