Today its Thursday 30th june and taken me a couple of days to get some clarity with our little Angels results after her visit to the Goldcoast to see Dr Pete Smith our Allergist.
As we walked into his office and waited to be called in by him , my nerves built up not fully aware if we were going to be walking out with yet another Epipen for our family which already has Two. This quote “A change in perception creates a change in personal reality.” - Kurek Ashley is what has been keeping me positive , after we found out that our little Angel has condition called FPIE – Food Protein induced Enteropathy which is a less severe condition then FPIES and yet still treatment is still the same.
I’ll be honest for a time after we were told officially By Dr Pete Smith that she has this condition , and yet had skin test which came back great compared to her brothers meaning no Epipen is needed , we couldn’t help but Celebrate the no Epipen. Then came the travel home and the time to think and think about what this meant to us and to our little one.Well first of all on the way home we stopped off for lunch , not a normal lunch in which everyone would stop and have and get out of their car and order and possibly sit and eat.Yet we stopped and ordered and had to sit in the car with one of us keeping our little Angel busy and distracted then swapping over all to make sure our little one didn’t see us eat as we can’t feed her anything ( mind you she was given her prescription formula and also some pear , which she is allowed).
I suppose even after lunch and the travel home it wasnt until later that night I sat and thought of what else this will change over the next few years.We already couldnt celebrate her 1st birthday with a birthday cake. I sat and started to think how if she was just needing an Epipen how I already know what to do and how to avoid things to keep them safe , I suppose the unknown journey ahead was what I feared just when you think you have things sussed , life then shows you that you really don’t. Around every corner is a new lesson and a new journey.
So back to Perception , when I was sitting Tuesday night after we got back home , I had moment where tears just flowed , with all sorts of feelings yet again the same as when we first had one of our little ones diagnosed with Food Allergy and given an Epipen….. Questions of why our children? , why us? , what have I done wrong ? etc when I was stopped by my husband as he saw me upset and had run me a bath and said to go relax ( yes my bucket was empty as written in one my previous blog that sometimes we need time out for ourselves , and sometimes someone close to us needs to remind us of this).
As I layed and relaxed in the bath I still had out of control thoughts going through my head wondering the where from here etc?? then I started to change my perception , started to change the questions that I was asking myself, Some these questions were What am I grateful for? What is great about today? …… as soon as we ask ourselves right questions we soon get the positive up lifting answers we need.
So hence why my Title of this blog , that on any journey in life have it be Food Allergy related or not if we change our perception and way of thinking it is amazing where our mind goes and from there the more
empowered we can feel to take on our days and the next challenges we have in front of us , as i so know this isn’t the first and sure isn’t going to be the last.
So let me leave you with this other quote
“Weather you Think you can , or can’t You’re right” – Henry Ford
Thank you for reading look forward to any comments or Questions
****An enteropathy identifies a disease of the intestine. A protein induced enteropathy is a condition in which there is a loss of protein from the intestine, resulting in the inability for the organism to absorb proteins.
An enterocolitis also called coloenteritis, is the combined inflammation of the small intestine, the bowel, an enteritis, the large intestine and the colon.
The symptoms seen in infants with dietary protein enterocolitis are very similar but more severe than those observed in protein enteropathy.